walk with Abby

Hello Friends,






Hello Friends,

Abby has been doing so so good. She seems to get better every single day. We went to Scottish Rite a few weeks to see the specialist in regards to her Vasculitis blood disorder. They said All her labs are good, and she on the road to recovery. We did find out that in some cases this type of blood disorder can attack the lungs as well, but it only attacked her kidneys Thank God and she has no signs of lung problems! It was uplifting to her the Doctors say she will be able to lead a normal life once she has her transplant.

Abby is doing good being back in school, she looks forward to swimming this summer! She has four more monthly chemo therapy treatments left, then the doctors will reevaluate her Vaculitis and then if all her labs are good she can start the process for a transplant. Continue to keep her in your prayers, my Abby is a miracle and God reminds of that each and every day.

Thank you for your love and support!

School Here We Come

I happy to announce that Abby is back in school. After being home for a month, she is now strong enough to return to school. Besides, being a little nervous, Abby was actually excited to go back. Her class greeted her with hugs and excitement and 3 welcome back banners. One of the ladies from Cooks Children's Hospital came down to speak to her class. She talked about what Kidneys are how they work and what happens when they don't work, dialysis and Kidney transplants, seizures she covered all of it for them. She answered all their questions so Abby wouldn't be bombarded with questions her first day back. It really helped her feel at ease. Abby had a great first day back in school. She said everyone played with her at recess and she felt good. How amazing is that. When I first started this blog weren't sure when she could get out of ICU now she in school!

Abby is officially 9. She had a grease theme party. She was a pink Lady of course. She had a nice party with family and friends. She got a lot of gifts and her favorite gift was a Beta Fish that she loves. She is so on top of her game with her fish. She has been making home videos of herself being silly. I posted one to show you how funny she is and so you could how amazing she is.

Her health is getting stable, she goes this week overnight to the hospital for IV Medicine, then can return home the next day. We will being a specialist soon to help with her blood disorder and hopefully get on our way to a transplant.

Thanks for walking with Abby! her walk is getting better and better..

The Note

Last Friday Abby found out she could write the President a letter. She decided to write the President a letter to tell him about what happened to her and here is how it went. I will write just how she wrote it.

Dear Oboma,

I am Abby Ornelas 8 years old and I wanted to tell you if it is hard bing a president and you are going to be on a coin or a daller and I wanted to tell you what hapend to me it was last December and i had the fluw and I was done with my medcne and I was still sleepy still fill week and slepyed for 11 or 12 hours a day and the doctor send me to go to the emergency and take a xray and then they said that my kideys wernt working and they hade to put a IV in me then they took me to cook childrens and they took care of me. and every night thay stook me with needalls. people visited me and family. thay had to do sergery to put two catherders but one they took out and now im doing dayalices, now i need a kidney transplant and all my family wants to give me a kidney I need to be healthy for 6 months and my blood is good and I can get a kidney thransplant this the first month sence I got out of the hosiptal and in April it it will be my birthday. April 1o and I wanted to tell if you can come to my house or send me something to remeber y0u by. Love abby

Stronger and Stronger

Abby has been home 3 1/2 Weeks now. She is doing pretty good and it's so amazing seeing her move around. Her endurance just keeps getting stronger and stronger each day! We went to the Fort Worth Botanical Gardens during spring break, she along with her brother had such a good time. She didn't get tired once just like her old self again. We got some great news too. Those of you that have been following her blog might remember me mentioning that her seizures were thought to have caused damage to her eyes, while we went to the eye specialist and beside needing new glasses, Abby eyes are fine, no damage! How great is that. My little girl is so positive everyday! She doesn't complain when she could. How many of us girls know if we had to take medicine that made our cheeks chubby, we might have a fit. Well my little mama just laughs at her chubby cheeks and says I don't like them, but once I get my kidney transplant I will normal again. Most kids during this time are dreaming of toys and that kind of stuff, not Abby she just wants to hurry and get her transplant. As mom it's tough when you ask your kid what they want for their birthday and they say a kidney. All in time, Today Abby was doing her homework and it was about plants, it talked about kidney beans, and she looked me very seriously and said "If I eat kidney beans will that help my kidneys?" it was funny.

We got our Abby back. She is laughing and singing again and being a silly girl all over. She is so cute texting her aunties and calling her cousins on the phone to chat. She has been through so much, from a healthy little girl to be on a ventilator and look at her now getting stronger and stronger. There is always light at the end of the dark tunnel. Abby goes back to the doctors this week, we will find out when they will test her to see if her blood disorder is on remission yet. So please pray it is, so we can start her journey to a transplant.

Thank you so much for your thoughts and prayers. A special thanks to Lana for putting a smile on Abby's and Elisha face last week!

"What seems to us to be bitter trails are often blessings in disguse" Oscar Wilde

two weeks...

Today is two weeks Abby has been home and I have to say it is going good. We went to the doctors today and all her labs were better. Dialysis is going good and Abby is getting stronger each day. She went before spring break to visit her class at school. She seen thier green bracelets they have been wearing in her honor. It was very nice.

Abby went to a birthday party on Saturday, and she was very upset with me when she couldn't go in the jump house. It is on her no no list. After a cool down Abby took her frustration out on the party pinata and beat it open. It made her day all she talked about was how she was able to break that pinata. Sometimes we have stop looking at we can't do and give our all to what we can do.

Abby will be able to go back to school soon. She is excited and nervous at the same time. She is so happy the hospital will send someone before she goes back to explain to her class her kidney problems and how to receive Abby back. She is excited to see her friends and her teacher, she is nervous the kids will ask questions she doesn't know how to answer. What kid wouldn't after being through so much.

Abby is so really getting stronger and stronger each day. When she first got home she could only bike ride for about three blocks, now she can ride her bike for over a hour. The other day we went to the park and had a picnic. It was just awesome to see her playing on the playground, running around and going on the slide. I sat there and thought a month ago she was on a ventilator fighting for her life, a month ago she was to weak to get out of bed, a month ago seemed like this day would never come. God is able to do the impossible with one little strong girl.

After a six hour long doctor visit, Abby has conquered text messaging. She is constantly texting everyone now. It so funny.

Next month the doctors will be checking her blood disorder to see how its doing, please pray and believe God with me that it will on remission. Once its on remission she can get a transplant. All Abby talks about is her kidney transplant. I asked the other day what she wanted for her birthday and she told me a kidney. When she found out how many people in our families want to give her kidney and she says I only need one. She was giving Elisha a crash course on her kidney failure the other day, as I stood there listening to her educate him, I thought to myself WOW!

Keep praying for her progress she is doing good and we know she will continue on. Thank you for following her blog and all your prayers. I want to say a special thank you to HighPoint Church for your kindness you showed Abby and I and the last Chik Nite, It was so sweet and thoughtful. Thank you Ms. April and all the chiks at HighPoint.

Abby back in Action

It has been a week since Abby has been released from the hospital. She did have to visit the ER on Friday for a small seizure in her arm, but she was able to go home with some medication. Since she has been doing better. Abby is slowly back in action. Movies on Saturday, trips to walmart and even a short bike ride today. I'm so proud of her determination to get back on track. Her strict diet can get hard for her, can you imagine being 8 years old and not able to have pizza anytime you want. She does abide to her list of do's and dont's though. She is getting use to her shots and Dialysis is going real good. Since she has been home she has some chunky cheeks, but they are so cute! I call her Chiquita... When I call her Chiquita she calls me big mama.

The other day all of us were in the car driving home. Abby ask when she could have her transplant, I told her about her blood disorder having to be in remission for six months and the whole process. She did start crying since she thought it would be sooner, then Elisha her Lil bro told her "Abby it's OK with me, you can have my kidney so you won't be sad" It was the sweetest thing ever. He put a smile on her face.

On Sunday Abby was so excited to go back to church. She went to Base Camp at church and had fun. She got some special attention. She received a big poster board from the staff and friends from church, which is now hanging in her room. She was able to see Pastor Gary and April to thank them for praying for her. It was a awesome day for our whole family.

Abby has been very strong and her Independence keeps growing and growing. She is always so quick to offer help around the house. Tonight her daddy worked late, so she was helping me get her dialysis ready. She does her school work faithfully everyday. I've been slowly talking to her about returning to school once the doctor releases her. She's ready to go back, but she rather be home with me. She is very sweet to me, I need some of that sweetness to rub off on her and Elisha when their together. If fighting is the way siblings show each other love then they love each other a lot.

Everything Abby has gone through is for a reason, a reason we may not see to later. What we do know is God makes no mistakes. Children are a gift from God, He trust us with them. He knew Abby before she was in my womb and what she would become and all that she would have to endure to get there and He choose me to be her Mom, what a honor. As parents we are suppose to teach our children, but sometimes they teach some of life's greatest lesson.

Thank you all for following her blog and all your nice comments, it so sweet. Thanks to all of you who have sent cards and gifts. It always put a smile on Abby face.

"While we try to teach our children all about life, Our children teach us what life is all about." Angela Schwindt

She's home

Abby is finally Home! She was able to come home Tuesday evening. One of the dialysis Nurse worked very hard. I so appreciate her hard work to get us home. The first place Abby wanted to go was to Soupersalad. Then we went home to get settled in. Yesterday Abby spent her first day home getting caught up on some school work.

Before we left the Hospital, the Docs got all her allergic reaction stuff settled, and she was out of ICU for a few days before going home. Abby has been in the hospital for a long time. the first visit was 28 days, then she was home 12 days then she went back for 25 days. That really became a lot for Abby. The last few days in the hospital she was some what down, but she is slowly becoming her self again now that she is home. She is ready to go watch Alice and The Wonderland and to go to church this weekend.

Now that she is home, we are able to do dialysis here at our house. Yesterday was the first time I gave Abby a shot so not fun, poor thing was nervous. She wants to give Me or Memo a shot of water first to make it even.

Abby has matured a lot these last few months. She has taken on this illness so well. She just goes with flow and takes it as it comes. For example yesterday we went grocery shopping and was looking at labels to see the sodium contents. She was like look Mom I can have this. She is just a different kid from before, more stronger and mature. She is awesome!

Before Abby left the hospital she made some home made Plato, she did make some for her brother Elisha, so last night when we were unpacking her stuff she was giving Elisha his Plato and tossed it to him, hitting him in the eye! what a bitter sweet gift huh? We also have baby monitor's in her room so we can hear her and the dialysis machine. Since Abby is hooked to her dialysis machine in the mornings and stuck in her room, she uses the monitor's to mess with Elisha. She make scary voices on it and is like Elisha I'm going to get you, or she uses it to argue with him. Its so funny. Elisha takes it with everywhere in the mornings. He still hasn't got the concept that he can hear her but she can't hear him. The monitor is very entertaining in the mornings!

Keep praying for Abby's progress, we know we are on track to a brighter tomorrow!

The will God will never take you, where the grace of God cannot protect you!